Today was the last day of pheresis. It is my understanding that there will be no more rounds of this, so good-bye to our sweet pheresis team and their crazy Dr.Suess pheresis machine, thanks for the good times! Tomorrow Oakes will get a "chemo-like" drug (he has been getting this once a week since the rejection was diagnosed) followed by some lab work. Results of those tests should be back mid-week and will tell us if the aggressive chemo drugs, steroids, pheresisand meds have been effective in reversing the rejection. In the last few days Oakes has been switched from one pain medication back to morphine, his catheter has been removed, he is at full feeds and he has been blowing out multiple diapers a day - likely a side effect of all of themeds he is on. He is not nearly as puffy as he was about a week ago or even days - a sign that his kidneys are working better. His vent has been weaned some, but nothing significant. Some days he has kept up with the adjustments to the vent, but other days he struggles a bit and the vent gets turned back up. He is no longer laying flat, his nurses now have him up in his boppy, which looks like a comfortable change to me.
Isla still has a yucky nose, but hasn't had a fever in probably 3 days. I don't think I got her germs in hind-sight, my symptoms were very different and I think I was just showing symptoms of flaring allergies. Still, I am masked and gowned and keeping my distance.
Praying that this week will be another good week, with several Oakes sized steps in the right direction. Heartstings to all of you! Becky