I know you have all been thinking about Oakes today and have been praying that that fever disappeared......and it has. Uneventful night. Feeds up to 24 mL an hour. Bloating is minimal, he looks better today than he has since transplant. Pheresis early this morning. Receiving chemo now, then will immediately get another chemo-like drug this evening. Still no need to paralyse him, he has been squirming more than ever. His right hand that is now free of an IV is now restrained because he was moving it awfully close to his vent tube. So far, another good day!
I am praying that his moving around is simple agitation. I pray it is his fathers temper flaring and it is not discomfort and pain. I pray that we do not see that temperature ever again. I pray that Oakes feels all of the love that surrounds him, and I pray on days like this when he is getting such heavy medications that he can easily drift off to his "happy place" and get away from the chemo, the tubs and tape and the beeps and buzzes of the machines around him.
Head over heels in love with Oakesie today! XO, Becky