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Friday, August 12, 2011


Oakes has had a couple of good days again. No news has been good news. He is still waking up and squirming around. His numbers look good overall. Occasionally when he wakes up he gets upset and his numbers jump a bit, but nothing alarming. Still coming down on the vent, urine output is good and still tolerating feeds just fine. Today is the second day of pheresis in this round.

Yesterday Isla woke up with a mild fever and yucky nose, so we did not go to the hospital yesterday. Germs and Oakes would be extremely bad combination since his immune system is so compromised. Ena is in town and on Oakes patrol today, while we stay at home and snuggle with Isla. Being spoiled by lots of incoming gifts and goodies has been a huge help these last 36 hours or so!

Praying for more of the same with Oakes. Hoping Isla loses the yucky nose and takes to the potty very soon!

Hugs and Heartsting tugs to all of you!


  1. Always good to hear good reports! Oakes is hanging in there! So glad you have someone getting face time with Oakes while you care for Isla. I would love to see a video of Isla doing her "heartstring" thing. Sending love and big hugs,

  2. Best wishes and God's love and blessings to all of you.

    Yucky nose, go away. Potty, YES!

  3. Happy belated 5 month birthday to Oakes. Praying continually and taking really deep breaths for him. I hope that Isla is over her "cold?" soon and makes steady progress with potty training. Sending prayers and heartstring tugs for all you Ortyls. Debra Taylor (Paris, TX)