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Friday, July 29, 2011

9am Update.

At rounds Dr. Huddelston commented that "this is heading in the wrong direction", and Dr. Oren, the Attending just spoke with me and reiterated Dr. Hudd's thoughts.

Oakes condition is severe. He is just so very sick. Test results from yesterdays biopsy have not come back but treatment for rejection has already started. If he does not respond to those meds he may go on ECMO (heart and lung bypass) for a short time to give the lungs a rest and see if he can recover. He can come off of ECMO if he does, but if he does not recover then this will be the end of his short but precious life. Because of this quick rejection and the critical state that he is in, he does not qualify for another transplant or for the lung bypass machine that we have mentioned before.

I am praying for a few more miracles for my guy. I am also praying that he stays comfortable and peaceful while we go through this day. And that he knows we are here and feels all of the love that this world has for him.

11 comments:

  1. Danielle posted Oakes' story on her blog, and I just wanted to let you know that although you may not know me, another mama out in the world is praying for Oakes and your family. He is a beautiful little boy!

    Katie

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  2. praying for you in Oklahoma city. What a sweet baby boy.

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  3. More prayers from Oklahoma City for the Mighty Oakes and your family.

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  4. I too heard about your story via Danielle. Prayers from Houston that things start moving in the right direction.

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  5. Love and prayers coming from California. You and your beautiful family are in my heart today. May you and little Oakes find peace and strength when you need it most.

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  6. We have been praying for Oakes since Lynn posted news of his transplant. Continued prayers from Kirkwood for your courageous little guy and you all.

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  7. Sis, I'm praying that Mighty Oakes has found his happy place and is just remembering his days at home with his family and all the good days!

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  8. Praying for Oakes and your family by way of Danielle's blog. Lifting Oakes up and praying for peace and that he is pain free during this time. For many reasons, even as a nurse, I believe in miracles... Praying, praying, praying!

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  9. May the skies open up and pour blessings and healing goodness onto your sweet baby Oakes ~ prayers and surviving wishes are being sent your way.

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  10. Heather LalumondiereJuly 29, 2011 at 1:05 PM

    We've never met however we've been following little Oakes through Brian and Tricia Rose. Weve ben praying for all of you and will keep doing so! Your amazing strength, courage, and love have shown through in your blogs. We too believe in miracles and will pray for one!
    The Lalumondiere Family

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  11. May Oakes be caccooned in a blanket of love and peace be in your heart as you travel this rough road. Blessings to you all

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