Although, he had a really rough night. At midnight Oakes was put on a continuous drip of paralytic because he was having fits, but was still d-stating. We got a call at 3;30 am that his nurse changed his diaper, and just that stimulation and stress on his already paralyzed body was too much. His numbers dropped and they had to bag him. In the past paralyzing Oakes would let us gain control of his little system so having him d-stat while paralyzing him was a new all time low. Greg and I were up all night talking about what was going on and calling in to get hourly updates. At 9am they did a bronch procedure at his bedside. I was beyond stressed wondering how he would tolerate a camera going through his airway if he wouldn't tolerate his hiney being wiped, but he did great. His airway looked like a "wet sponge" according to Dr. Michelson. So it is swollen and wet, but no obstructions. And the best part was that he tolerated it just fine. And actually since then his numbers have improved, so passing that little camera through is airway must have helped a little.
Right after the bronch, our old pheresis nurse Emily came back to set up for dialysis. They started at about 11am, and right now, at 12:20 they have already taken off 40ml of fluid from Oakes' belly. He is paralyzed, and tolerating this just fine. His numbers are great, and honestly this is pretty boring. Praying that the day remains this way.
Thanks for all of the love and support.
More updates to come!