Oakes' ballooning went well the other day. Nothing exciting or out of the ordinary to report. Pretty much boring all around. Oakes is now unparalyzed and moving around, smiling and sucking his thumb like he was over the weekend. Today, Oakes took lots of little cat naps, listened to nursery rhymes, had some physical therapy, gazed at his mobile, read books with Momma, then had a brief but loving trip to Momma's arms. At the end of the day, Oakes' vent was weaned a bit and so far his numbers and gases look great. Dr. Oren is on today and he said that they are hopeful that they can wean his vent some more over the weekend, and then they will start to wean some of his meds.
Dr. Oren also shared that all of Oakes' test results from last week are in. The DSA test that tests the antibody levels are still trending down, which we had anticipated, but still are very thankful for. The AMAZING news was that the test that is done to detect that sticky and annoying Compliment #5 came back NEGATIVE! This is a first, and SO very exciting.
Before I headed home for the day we took a few more Halloween pics, and here they are:
You can't deny that he is pretty magical!
Astronaut Oakes Ortyl...
Going where few babies have gone before! (with a thumb in his mouth!)
One of Oakes' biggest fans, and super fantastic Pulmonologist, Dr. Michelson.
Our little angel.
And of course, since so many have fallen in love with him....Cupid! ........... ........... ........... ........... ........... ........... ........... ...........
So, good news, silly pics, and here is just normal baby stuff that makes me SO happy...
Two new chompers!
We have been loving all of Oakes' costumes! Glad for a steady week and that pesky #5 has moved out! Prayers continue for Oakes to keep going at his pace! Prayers continue for you all.
ReplyDeleteWow, the cuteness factor is off the chart here! Awesome costumes, the astronaut is my favorite!
ReplyDeleteOakes is shootin' for the moon!
LOVE the teeth! Yay for normal baby milestones! So glad to hear that the test results came back so good, and that his recovery from the ballooning was so much quicker this time. Hoping for a boring weekend with slow, steady progress the Mighty Oakes way!
ReplyDeleteGo Cards!
Love from your MI family,
Kim
Oh, my heart is singing! We've loved seeing all the costumes but he smiles, sweet chompers and news of fantastic test results top 'em all. Prayers of thanksgiving and continued support for all of you, Mighty Ortyls!
ReplyDeleteLove,
The Gabris family
Love the costumes and love the news! Here's to more boring weeks ahead and such awesome results! Best to all, Jake, Morghan, Hayden (3) and Ozzie (17mo)
ReplyDeleteWow! Go Oakesie! Love to all. We could have used Isla and Oakes in our snowball fight yesterday.
ReplyDeleteLOVE LOVE LOVE the pics and the lil choppers. Thinking of you all, every single day.
ReplyDeletelove and hugs, Jewels